I am a mother of an 11 year old daughter who was diagnosed with encopresis when she was entering kindergarden. She still has it to this day, and she never lets me and her father stop hearing, "It's been six years!". It's driving the whole family crazy. She'd be out way more then allowed during school, and D.S.S was even called on me for her absences. During a bad spell, she calls them "flareups" She'll curl up and hug her knees and scream about how her stomach hurts. She tries, and tries and tries and never can have a bowel movement. We've tried MANY medicines, such as: Miralax, Senna (Liquid), Senna (Tablets), Fiber gummies, Fiberlax, Amatiza (A medicine she was too afraid to take many of, due to how short of a time they'd been approved for minors.), Exlax chocolate squares, SO many fiber suppliments, and many types of dulcolax. She's been through 3 disimpactions, and many enemeas. We know we cannot go back to the hospital due to the many many times we've been over the last 6 years. During enemeas, she'll bawl her eyes out, and will be screaming so much that I simply can't do it.
Her father isn't very supportive to her, but he isn't to me either. My daughter will come to me crying saying, "Daddy called me useless." or, "Daddy said I'm gonna grow up to be miserable and he said a bad word about me." He's hit her many times before, but out of disciplin. He'd never just hit her. She's gained lots of anxiety about how people look at her, cause of how much she has to stay from school. As I'm writing this, it was her first day of the second week, and I had to keep her out.
I'm unable to stand this anymore, and I can't stand seeing her suffer. After her third proceedure, she kept up with miralax and water and she'd have bowel movements after school every day. By the second week of summer, it stopped. She was drinking water and taking miralax, but she wouldn't have bowel movements. I'm out of ideas, and I really need help. Things like psychotherapy, rewards, and medications + plans never work. She's very willing to get better, but she's scared and nervous about the options we have. I can't stand seeing my daughter like this anymore. Does anyone have any suggestions?