My 13-year-old son had been highly athletic his entire life. About 18 months ago we noticed him losing strength in his legs. Over time it has gotten worse and he cannot run normally anymore.
He has lost muscle in his hips (his hip bones will not stay in place because of lack of muscle), the muscle that holds his knee cap in place shows signs of atrophy, etc. We have seen an ortho doctor (did MRI for tutors) nothing, went to neurologist and had testing done on his nerves, everything came back fine, went to geneticist everything came back normal, went to rheumatologist, his joints are fine.
No one can tell us why he is losing muscle. We are at a loss. His arms do not seem to be affected, only his torso and thighs, and now knees. We are desperate for answers to help our son. Physical therapy seems to maintain muscle but not improve him.
Anyone ever had this with their child?