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We took our healthy daughter for her 4-month checkup and half-jokingly asked the doctor whether we should be concerned about the fact her head is a bit mis-shapen. It is fairly round in the back left but the back right is noticably flatter.

To our surprise, she referred us to a cranial plastic surgeon for their opinion and so that we can "be presented with our options while its still early enough to do something"...with the most likely option being a special helmet that helps her skull to grow evenly.

We have the follow-up appointment next week where I'm hoping to get answers to these and other questions, but we'd love to hear answers/opinions from anyone else that has heard of this:

  1. Any risks to be aware of?
  2. How common is this sort of thing?
  3. Is there any reason to use the helmet other than cosmetic reasons?
  4. Will my daughter resent us for not getting the helmet for her if she has a mis-shapen head later in life?
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seems that her potential annoyance at wearing a helmet at this age would be far less than her potential annoyance that you didn't do anything about it for her when she's 16. Granted, this all depends on to what extent of 'mishapeness' we're talking about. – DA01 Jan 22 '12 at 23:08
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A friend of ours has a daughter with a noticeable flat spot on the back of her head. Even with longish hair, it can be seen. If you have a simply fix, then I think it's worth fixing. – dave Jan 23 '12 at 20:15
Was craniosynostosis excluded as the cause for the malformed skull? – refro Jan 27 '12 at 10:00
Ask someone knowledgable about hair makeup if it could be an actuall problem later in life. – Barfieldmv Feb 1 '12 at 21:03
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We met with the cranial plastic surgeon and he diagnosed her with 'positional plagiocephaly' as we were expecting. He also offered to write a prescription for one of these helmets as we thought, but he also communicated to us that her plagiocephaly is mild-to-moderate and so it is likely that as she grows older and spends less time on her back that her head will naturally round out a bit. So we're going to skip the helmet for now but also see if it gets better/worse over the next couple months and revisit the decision. Hard to mark a 'correct' answer, but thanks everyone for your thoughts! – lmsurprenant Feb 5 '12 at 2:47

4 Answers

My daughter had the DOC helmet. She got it at 10 months old, and the whole reason we went with the DOC helmet and not the Ballert helmet was because the Ballert people basically had this really crummy attitude about older kids getting the helmet, and we'd only been referred to the craniofacial doc when my daughter was 9 months old.

  1. No, no risks.
  2. More common than you'd think, particularly with infants sleeping on their backs now and the use of baby swings.
  3. Well I was a big fan of the fact that I could walk my daughter into a doorjamb, but other than that, not really. It's kind of nice when they take a leaping dive off the couch, too, but you probably don't have to worry about that at 4 months.
  4. Who knows? I'm sure she'll add it to the list of resentments she'll constantly be forming.

A couple of other things to be aware of. Other people are idiots. If you do opt for the helmet (I highly recommend if insurance covers it that you do), people will approach you and ask you stupid questions like "does she fall down a lot?" or my favorite, the lady who told me "I'll be praying for her" without asking what the helmet was for.

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I'm going to put forward the counter-argument.

Be aware, the evidence to suggest that the misshapen head that babies get from sleeping on their back is going to lead to a permanently misshapen skull is highly contentious, especially in medical systems where there's less of a profit motive, and therefore no real advantage to the medical centre in selling what is at core a £2,000 cycle helmet.

The argument is that this will sort itself out on its own as the skull matures.

If you want to go ahead with this just in case, that's fine, but it's worth doing some research first.

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When the helmet is only cosmetic this can be true. It also could be a form of craniosynostosis. In this case a helmet alone is not enough but surgery is also needed. In the Netherlands (where i live) some forms of craniosynostosis are treaded with endoscopic surgery followed by a helmet to reform the head. – refro Jan 27 '12 at 9:58
True, thanks for the clarification. But this is NOT what's being talked about here. I specifically said "misshapen head that babies get from sleeping on their back". The misshapen head that results from a serious bone disease is, I would suggest, a different thing. – deworde Jan 28 '12 at 10:55

Our son had a bit of a misshapen skull, and we were recommended to take him for cranial osteopathy.

The osteopath was great over a course of a number of months (think he had about 5-6 sessions) the plates of his skull were gently manipulated to aid them with their alignment as he grew and they set.

This seemed to do the trick.

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I too would choose the cranial osteopathic route (but my gf is an osteopath and both our children have benefitted from osteopathic treatment).

UK specific, but The Osteopathic Centre for Children www.occ.uk.com is a specialist centre for paediatric osteopathy, they run both a clinic and extensive postgraduate training for osteopaths in cranial techniques and their specific application to children. There is a list of graduates of their course on their website so if you are not London based you can look to see if there is a specialist qualified paediatric cranial osteopath near you. If not, ring them for advice. Ring them and ask questions anyway, 020 8875 5290 or email them your questions at enquiries@fpo.org.uk

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